Vulvodynia StatsSurvey

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pain

Do you have "pain"? Have you experienced any other symptoms of Vulvodynia? Think it's caused by something else? See what else it might be.

At CureTogether, thousands of people worldwide are sharing data (anonymously) on their experience with Vulvodynia - and hundreds of other health conditions - to help each other better understand their health and find the right treatments.

In our live, online study of 609 people with Vulvodynia, 92% of 438 respondents have reported "pain".

Had "pain" with Vulvodynia?

Want to see what people are using to treat this? Check out the top Vulvodynia treatments.

6 comments on pain:

My pain is not on touch although I have to be careful with wearing tight clothing. I have a generalised 'sore' ache on the left hand side of vulva. In med exams, no pain.
Posted by: matilda August 19, 2009 10:26 pm
Sometimes I think I go mad. I have this now for six years, I am 58 and I pray for the day that my pain wil be over.
Posted by: El April 26, 2009 6:33 am
Comes and goes ,but almost never completely gone. Worse when I site or walk. Better when I lie down. Mostly in vulvar area. Could be burning, sharp. When bad, it's also aching. I can't wear pants; can't have sex except rarely. On touch at back of vulvar area (Bartholin's gland) pain is excurciating, like touching a raw nerve. This happens in med exams, pelvic physical therapy, etc.
Posted by: freepress February 23, 2009 6:36 pm
I still have pain in the area, but since going off of hormonal treatment (Seasonique) which was treating my periods, I no longer have the degree of pain I once did. At worst, the continual pain was 4-5, now much lower. I can wear jeans again, but pelvic exams are still horrible
Posted by: Magenta February 15, 2009 11:29 pm
I have had vulvodynia for 4 years, I have seen 19 health care professionals, I am 57 years old and sometimes you just have to cry. I have both physical pain and emotional pain.
Posted by: Bedelia February 6, 2009 3:56 pm
Unbelievable pain when my doctor tried to do a pap smear. I almost passed out, and she and I were both crying.
Posted by: Alexandra September 13, 2008 7:16 am

Browse Vulvodynia symptoms, treatments, causes and related conditions.

Pain also matches symptoms of:

Acid Reflux
Top symptoms: Burning in esophagus, Burning where stomach meets esophagus, Burning in throat or back of mouth, regurgitation

Acne
Top symptoms: Pimples, Deep pain raised spots, Blackheads

Adenomyosis
Top symptoms: Menstrual cramps, pain, Passing blood clots during your period, Heavy or prolonged menstrual bleeding

Adhesions
Top symptoms: bloating, constipation, back pain, abdominal pain

Anal Fissures
Top symptoms: Blood on toilet paper when wiping, Itching, Pain during defecation, Constipation

Anemia
Top symptoms: fatigue, weakness, Coldness in extremities, Dizziness

Angina
Top symptoms: Out of breath, <1 attack per week, Chest tightness, Chest pain

Ankylosing spondylitis
Top symptoms: morning stiffness, Low back pain, Stiffness in lower back, Fatigue

Anxiety
Top symptoms: Heart rate increase, Fidgeting, Constant worrying, Racing thoughts

Arnold Chiari Malformation
Top symptoms: Headache, Dizziness, Vision problems, Numbness

Arthritic Hips
Top symptoms: Pain, Hip stiffness, Limited range of motion, Limping

Arthritis
Top symptoms: Loss of movement, Swelling, Redness, Pain

Aspirin Allergy
Top symptoms: wheezing, Itchy skin, Breathing difficulty, nasal polyps

Atypical Trigeminal Neuralgia
Top symptoms: atypical trigeminal neuralgia, face pain, lightning bolt pain, head pain

Autism
Top symptoms: impaired social interaction, Repetitive use of language

Avascular Necrosis
Top symptoms: joint pain, stiffness after exercise

Back pain
Top symptoms: Neck stiffness, lower back soreness, Muscle Tension, pain

Bladder Infection
Top symptoms: Constant need to urinate, Pain with urination, Striking pain at end of urination, ache in abdomen and back

Boils
Top symptoms: Pus, Large boils on inner thighs, Pain

Breast Cancer
Top symptoms: Breast lump, Swelling of one arm, Tenderness under arm, Weight loss

Cardiovascular Disease
Top symptoms: Chest Pain, Light-headedness, Heart Palpations, Chest discomfort

Carpal Tunnel syndrome
Top symptoms: Wrist pain and/or numbnessin the fingers or hand

Celiac Disease
Top symptoms: Irritability, Stomach Pain, Fatigue, Depression

Central Pain Syndrome
Top symptoms: Pressure, Parasthesia, Allodynia, central pain syndrome

Chronic Daily Headache
Top symptoms: Literally have a headache, to some degree EVERY day, pain in different parts of head, pressure or squeezing feeling, ALWAYS a different type of pain, it can vary from day to day or from minute to minute

Chronic Fatigue Syndrome
Top symptoms: Concentration problems, Unrefreshing sleep, Incapacitating exhaustion, Fatigue

Chronic Groin Pain
Top symptoms: Chronic groin pain

Chronic Myelogenous Leukemia
Top symptoms: Fever, Tiredness, Night sweats

Chronic Pain Syndrome
Top symptoms: irritablility, stiff joints, tire easily

Chronic Sinusitis
Top symptoms: facial pain, bulging forehead? (unsure if symptom or unrelated), Stuffiness

Cirrhosis
Top symptoms: Fatigue, Weight loss, Loss of appetite, Abdominal pain

Cluster Headaches
Top symptoms: cyclic pain (off and on), Restlessness, Stuffy nose, Pain

Connective Tissue Disorder
Top symptoms: unexplained pain, Joint pain, Hair Loss

Constipation
Top symptoms: lower back pain, Bloating, Painful Gas, lack of regular bowel movements

Crohn's Disease
Top symptoms: Abdominal pain, Diarrhea, Weight loss, Loss of appetite

Cushing's Syndrome
Top symptoms: Severe fatigue, Weak muscles, Anxiety, Irritability

Dysmenorrhea
Top symptoms: Fatigue, Pain in lower abdomen, Diarrhea, Heavy blood loss

Ehlers-Danlos Syndrome, Classical
Top symptoms: Easy bruising, Velvety Skin, Subluxation, Joint Pain

Ehlers-Danlos Syndrome, Hypermobility
Top symptoms: Joint Pain, Chronic Fatigue, Subluxation of joints, Chronic Pain

Endometriosis
Top symptoms: Bloating, extreme fatigue, Pain during/after intercourse, Pain during periods

Epstein-Barr Virus Infection
Top symptoms: fatigue, muscle/joint pain, trouble breathing, brain fog

Erythema
Top symptoms: skin redness

Essential Tremor
Top symptoms: Uncontrollable tremors that occur for brief periods of time, Tremors lessen with rest, Tremors worsen with stress

Eustachian Tube Dysfunction
Top symptoms: muffled hearing, pressure in head, ear ringing, ear won't pop

Fibromyalgia
Top symptoms: severe muscles aches in entire body, sleep disorder, Morning stiffness, chronic fatigue

Gastric Hyperacidity
Top symptoms: burning in stomach, hunger type pains 1-2 hours after eating, gas in stomach

Gastroparesis
Top symptoms: Pain in stomach, Nausea

Gilbert's Syndrome
Top symptoms: Increased bilirubin levels, Fatigue, Weakness, Abdominal pain

Glaucoma
Top symptoms: Loss of peripheral vision, Blindness, Blurry vision, Halos around lights

Gout
Top symptoms: inflammation of joints, Tenderness

Hammertoe
Top symptoms: pain in toes

Hashimoto's Disease
Top symptoms: Depression, Increased cold sensitivity

heart disease
Top symptoms: heart disease, Shortness of breath, Some times i get a chest pain when i climb a flight of stairs.

Heart Murmur
Top symptoms: Heart palpitations, Shortness of breath, Hearts thumps hard for a few seconds. Dizzy. Anxiety.

Heartburn
Top symptoms: Burning feeling in chest, Burning worse after eating, Acid in throat

Hemicrania Continua
Top symptoms: Pressure and pain at top of sinus on affected side, Tearing/Redness of the eye on affected side, One-sided 24/7 headache (grinding pain), Headache Flares- multiple times a day (5-10) last a few min.-hours (sharp stabbing pain) also only on one side

Hepatitis C
Top symptoms: Fatigue

Hereditary Spherocytosis
Top symptoms: Fatigue, Stomach pain, Jaundice at birth, Spleen and/or liver Weeping/tearing

Herpes
Top symptoms: Sores, Pain, Swollen glands

Hypochlorhydria
Top symptoms: feeling full for a long time after meals, excruciating stomach pain, acute pain until bowel movement

Insomnia
Top symptoms: Waking up at night, Daytime irritability, Daytime fatigue, difficulty falling asleep at night

Internal Vaginal Staph Infection
Top symptoms: Burning, unbearable pain in the pelvis. Swollen vagina, negative for yeast, negative for stds, negative for bacterial vaginosis

Interstitial Cystitis
Top symptoms: urinary frequency, urinary urgency, pelvic pain, burning

Irregular Heart Beat
Top symptoms: palpitations, lower back pain

Irritable Bowel Syndrome
Top symptoms: Cramping, diarrhea, Flatulence, Bloating

Keloid
Top symptoms: Recurrence after surgery, Stabbing pains, Itching, Continued growth

Keratosis Pilaris
Top symptoms: Small, acne-like bumps on skin, Redness, Painless bumps on skin

Kidney Stones
Top symptoms: Fatigue, Severe Pain, Nausea

Knee Pain
Top symptoms: dull ache in the knee, pain when the effected leg is bearing weight, sharp pain in the knee, pain when the effected leg is NOT bearing weight

Lactose Intolerance
Top symptoms: Bloating, Gassy, Stomach pain, Vomiting

Lichen Planus
Top symptoms: Rows of flat-topped bumps, purple/pink/red, redness, itch, Burning sensation

Lichen Sclerosis
Top symptoms: vulvular pain and itching, vulvar tearing

Liver Disease
Top symptoms: Muscle aches and pains, Depression, Fatigue, Loss of sex drive

Lower Back Pain
Top symptoms: radiating leg pain, Pelvic Pain, Forward bend pain

Luteal Phase Defect
Top symptoms: Infertility, Migraine, Increased moodiness, PMS

Lymphoma
Top symptoms: Fatigue

Mastocytosis
Top symptoms: Abdominal cramping

Meniere's Disease
Top symptoms: sensation of pressure or pain in affected ear, dizziness, tinnitus, vertigo

Methylmalonic Acidemia
Top symptoms: Chronic pain in the tailbone

Migraine
Top symptoms: Nagging Pain in one side of head, pounding head, nausea, Fatigue

Mitral Valve Prolapse
Top symptoms: palpitations, fatigue, anxiety, dizziness

Mouth Ulcers
Top symptoms: Painful sores inside the mouth

Multiple Sclerosis
Top symptoms: Poor balance, Fatigue, Numbness

Myofascial Pain Syndrome
Top symptoms: trigger points, nerve pain, fatigue

Neck Pain
Top symptoms: Neck stiffness, Dull pain in neck, Sharp pain in neck, Shoulder pain

Neuralgia
Top symptoms: Increased skin sensitivity, Pain along the path of a specific nerve, Constant, burning pain, Sharp, stabbing pain

Neurological Problems And Chronic Pain
Top symptoms: chronic pain, weakness, back pain

Neuromuscular Migraine
Top symptoms: headache, neck pain, sensitivity to light

Neuropathy
Top symptoms: numbness (but painful numbness), tingling, stabbing pain, exquisite sensitivity in affected area

New Daily Persistent Headache
Top symptoms: no known trigger, pain levels vary during the day, begins at random, daily headache(s)

Nicotine Addiction
Top symptoms: tooth pain, fatigue, unfocused, sleep apnea

Night Cramps
Top symptoms: spasm of muscle in calf, spasming of muscles in foot, ankles, shins, curling toes, total muscle lock in both lower legs simultaneously

Obesity
Top symptoms: fatigue, Lower back pain, Joint Stress, Accumulation of excess fat

Obstructive sleep apnea
Top symptoms: breathing pauses during sleep, extreme fatigue, Loud snoring, Restless tossing and turning during sleep

Occipital Neuralgia
Top symptoms: shoulder pain, neck spasms, headache, neck pain

Occipital Neuritis
Top symptoms: Piercing pain on one side of head, Neck pain, Neck tenderness, ear ache, headache

Orchialgia
Top symptoms: chronic testicular pain lasting more than 3 months, have been put on antibiotics for less than 2 weeks, have relied on NSAIDs or other "pain killers"

Osteoarthritis
Top symptoms: Crunchy, crackly sounds in joints, ie. neck, Intense pain in affected areas, Immobility, Stiffness and lack of mobility

Osteoporosis
Top symptoms: bone pain, pins and needles, pressure, fatigue

Ovarian Cancer
Top symptoms: lower back pain, initial symptoms include bloating, fatigue, intestinal discomfort. These symptoms may be mild and easily overlooked. Bloating can be shrugged off as weight gain.

Ovarian Cysts
Top symptoms: excesive bleeding at period, pain/discomfort durring intercourse, pain, back pain

pain during sex
Top symptoms: vulvodynia, secondary vulvodynia, stabbing pain, burning around vulva

Palindromic Rheumatism
Top symptoms: Chronic but sporadic joint pain, lasting for a day or two each time, often in finger and toe joints., general feeling of unwell, joint swelling

Parkinson's Disease
Top symptoms: Memory loss, Cramping, Resting tremor, Fatigue

PCOS
Top symptoms: weight gain or difficulty losing weight, irregular menstrual cycles, acne, depression

Pelvic Congestion Syndrome
Top symptoms: vaginal discharge, pain worse when sitting, abnormal menstrual bleeding, pelvic pain

Pelvic Floor dysfunction
Top symptoms: painful intercourse

Pinched Nerve
Top symptoms: Pain

Piriformis Syndrome
Top symptoms: upper leg pain, numbness in the leg, lower back pain, hip pain

Polycythemia
Top symptoms: Dizziness

Polymyalgia Rheumatica
Top symptoms: Aching and muscle stiffness in hips, Fatigue, Weakness, Aching and stiffness in thighs

Primary Adrenal Insuffiency
Top symptoms: Progressive Fatigue, nausea, abdominal pain, amenorrhea

Prostate Cancer
Top symptoms: Difficulty urinating, Weak urine flow, Frequent urination, especially at night

Prostatitis
Top symptoms: Pain when urinating, Increased urinary urgency, Increased urinary frequency, Pain in prostate, lower back, or groin

Psoriatic arthritis
Top symptoms: Joint inflammation, Joint pain, Swelling of the fingers, Joints that are warm to touch

Pudendal Neuralgia
Top symptoms: pain with sitting, pain genitals, painful intercourse, burning in vulvar area

Pulmonary Hypertension
Top symptoms: Shortness of breath, Fatigue

Reactive Arthritis
Top symptoms: stiff joints

Restless Legs Syndrome
Top symptoms: worse at night, uncomfortable, compelling urge to move legs, worse during rest or inactivity, Symptoms are relieved by movement

Rheumatoid Arthritis
Top symptoms: Joint pain, Fatigue, Joint swelling, Joints that are tender to touch

Sacroiliitis
Top symptoms: Pain and stiffness in lower back, Pain in buttocks, Decreased range of motion, irritable sacral-iliac joint

Sarcoidosis
Top symptoms: Shortness of breath, Fatigue, Arthritis in ankles, elbows, wrists and hands

Sciatica
Top symptoms: leg pain, Lower back pain, Numbness in the leg

Scleroderma
Top symptoms: Gradual hardening, thickening and tightening of skin, Fatigue

Sclerosing Cholangitis
Top symptoms: Chronic liver pain

Shoulder Pain
Top symptoms: weakness in the arm, pain in shoulder when lifting the arm above the head, pain when resting the arm

Sjogren's Syndrome
Top symptoms: Dry mouth, Dry eyes, Dry skin, Dry nose

Spinal Stenosis
Top symptoms: Hip pain, Pain in legs, Radiating back pain

Stomach Pain
Top symptoms: burning sensation, sharp pains

Stress Fracture Foot
Top symptoms: Pain in top of foot, pain on side of 5th metatarsal pain on top of foot, made better by rest

Syringomyelia
Top symptoms: Shoulder pain, Headaches, Pain arms/hands

Systemic Lupus Erythematosus
Top symptoms: Joint pain, Fatigue, Mouth sores

Tendinitis
Top symptoms: knee pain

Tension Myositis Syndrome
Top symptoms: hip pain, lower back pain, knee pain, chronic fatigue syndrome

Thoracic Disc Herniation
Top symptoms: back pain, crushing feeling in mid back, radiating numbness, inability to sit longer than 20 minutes

TMJ Disorder
Top symptoms: bruxism (grinding of the teeth), popping noises in jaw upon opening mouth, Jaw tenderness

Ulcerative colitis
Top symptoms: Rectal inflammation, Abdominal cramping, Rectal bleeding

Ureaplasma
Top symptoms: Pelvic pain, Vaginal discharge, fatigue, Feeling you have to urinate all the time

Urethral Stricture
Top symptoms: diameter of urethra very small, split stream, pain during urination, increased frequency of urination

Urinary Tract Infections
Top symptoms: cloudy urine, Pressure in lower pelvis, Frequent or urgent need to urinate, Need to urinate at night

Vaginismus
Top symptoms: Muscle Spasms- Vaginally, Sharp, Stabbing Pain, Not able to tolerate Intercourse at all, Painful Intercourse

Vitamin D Deficiency
Top symptoms: fatigue, headaches, low energy, muscle weakness

Vulvar Vestibulitis
Top symptoms: Vestibular redness, Pain on penetration, Pain on contact, Burning in vestibular area

Whole Body Chronic Pain
Top symptoms: pain, pain in all mussles, muscle pain


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