Low oxalate diet

I cannot say that I followed the diet 100%, but I was pretty good for about a year - took timed Calcium Citrate also, but did not get better. I was part of the Vulvar Pain Project, but I had had a partial vulvectomy and that is what they thought made it hard for me to respond to the treatment. It has, indeed, helped many others though. In order to see if oxalates are high, the urine must be captured separately - not a 24 hour pool. There were certain times during the day when my oxalates were normal, but they spiraled upward in the evening, night and early morning. If those samples had been pooled, my oxalate count would have been normal even though at certain times there were over 7 times the "normal" rate.
Posted by: dcary February 25, 2009 12:30 pm

I tried this 2 different times once on my own & then to please the drs. It didn't do anything, so I asked for a urine oxalate test. It was neg, so I stopped. Now I'm on a low acid diet. Hoping this will help!!
Posted by: hollyleaf February 11, 2009 12:29 am

Did nothing for me, but I only have pain on contact anyway.
Posted by: Kittles February 6, 2009 6:34 pm

Certain foods give me a requisite & timely response, never good of course... I avoid the ones I can & take Prelief if I know I am eating something that could cause a flare up.
Posted by: akprincess72 January 23, 2009 8:13 pm

Before looking over high oxalate foods I would have horrible "pain days" randomly and after reviewing the lists at those times I found that a specific item on that list was related to all the "pain days" (green tea) i have not drank it since and no excruciating pain days!
Posted by: hmboyd January 23, 2009 5:39 pm

just made me miserable - i like food waaaaay too much -that and gave me tummy trouble... I find when i poop too much it just causes more flare ups for me
Posted by: juliagoolia January 19, 2009 5:35 pm

did nothing for me, unfortunately
Posted by: fanster January 7, 2009 12:20 pm

Definitely helped. I'm not pain free, but eating high oxalate foods will spiral me into major attacks. it's definitely not the healthiest diet, though. You really have to be vigilant about including as many of the food groups as possible. If you were ever a spinach lover, kiss Popeye good bye forever. It has the highest ox content of anything!
Posted by: tositagain November 20, 2008 7:46 pm

Did nothing for me
Posted by: georgina November 20, 2008 4:07 pm

I found the low oxalate diet very helpful. It moved me from pain all the time to pain only on contact. I still follow it, but am unable to tolerate calcium citrate because it makes my pain worse for whatever reason. The woman who take timed citrate seem to feel much better than those who don't. I combined diet, estradiol and biofeedback and did really well, no pain, able to enjoy sex without pain until menopause and then my symptoms got worse so I added HRT and effexor xr. This helped a lot and I was able to resume sex and was w/o pain. recently I started having pain again with sex but I have to stop taking HRT because I now have early breast cancer. I'm dissappointed that it's been 9 years now since I went thru menopause and 30 years since I developed vulvodynia and there still isn't a a cure for this scourge of women.
Posted by: gt1628 October 21, 2008 11:29 pm

My Dr. prescribed a simple lab test to see if my oxalate levels suggested a need for the diet. The test requires saving urine in a plastic jug for 25 hours (in an ice chest to keep it cool). The results of the test indicated that oxalates were not a problem. I was happy not to go on the diet, which restricts a lot of good-for-you-foods.
Posted by: McTwirly October 4, 2008 10:57 pm

Small success! I tried it maticulously for a month, and I noticed mild results. Again it probably took me from a pain level 8 to a 7, which was better than nothing, but in the end- just not enough to make a difference. Even though I am alomst 95% pain free now, I still do get occasional flare-ups for about 10-20min after I urinate (seemingly when I'm dehydrated. I always wonder if my oxalate level is high that day or if it's something entirely else. At the time I was living in Thailand, and Calcium Citrate could not be obtained anyhwere, so that part of the diet I did not complete.
Posted by: farenflora August 11, 2008 4:11 pm