Lying on the sofa with my feet up at the end of the day is such a relief. Sitting down discomfort varies with how much my vulva area has encountered. Ironically, walking aggravates it. Can't wear tight anything down there, panty hose seems to aggravate too
Posted by: matilda August 19, 2009 10:44 pm

My doctor has suggested a u-shaped pilow, almost like a toilet seat cover. Does anyone have any idea where to find one, or what they are called when searching medical supply houses. My sympathies to all suffering. i have been this way for 11 years and have tried everything; even have a mostly worthless pain pump. I need non-drug answers!
Posted by: mique June 14, 2009 5:58 am

At its worst, I have to lie down. Fortunately,, this has been more like a 4 of 5 at its worst since starting Gabapentin (neurontin) and disipramine several years ago. I recently found that some of this is caused by inflamed Bartholin's gland, which is at base on vulvar opening. Hot baths make this somewhat better. This was a great, great insight.
Posted by: freepress February 23, 2009 6:26 pm

I can"t sit for any meaningful time at all. I have had to give up so many social situations because of this. Except for my closest two girlfriends I don't even try to explain and even they show some doubt at times. I can't go to movies, concerts, church or even a restaurant unless I can stand at a hi-top or at the bar. I can't go on any trips in car over 30 minutes. I can't do that unless I'm in the most comfortable pants I own. I have tried to "will" myself through all of these situations, but I always end up in worse shape than before. Since I've begun PT it helps for a few days before the pain returns. The longest relief has been a week, so far. I'm thankful for that and is the best tx I've found so far.
Posted by: no.help.in.atlanta February 7, 2009 5:02 pm

My pain level of four was at my worst, about a decade ago. I had to use a "doughnut pillow" to sit on bad days. Even now, I can't wear regular jeans/slacks--I must have spandex/stretch ones. I can (and do) sit all day at my computer now, though I wear comfy pants/sweats and keep my pubic hair trimmed so it doesn't catch in the hem of my undies. I've also been using Estrace/testosterone/Lidocaine for several years.
Posted by: Kittles February 6, 2009 6:03 pm

Pressure seems to worsen my pain (blue jeans). A futon tips my pelvis so that I am able to sit for several hours.
Posted by: Bedelia February 6, 2009 3:38 pm

I feel much better now that I've started physical therapy.
Posted by: marit_pk January 25, 2009 2:03 pm

I find that I can greatly reduce my overall pain by standing while working.
Posted by: Anonymous January 12, 2009 6:48 pm

hate V
Posted by: georgina November 20, 2008 4:01 pm